Today i was walking to the train station from school. On the way there i found out that the train that had my friend on it was delayed by 50 minutes. I was already on my way there so i planned on finding somewhere to eat or get coffee as i waited.
I hopped off the el and went to find somewhere to stop. As i walked down washington and i looked at every food or coffee place, the signs all had one thing in common. "sunday-closed". As i continued on in my walk i kept seeing this over and over. Even the mcdonalds i passed said "sunday-closed".
I started to think about the relevance it had to me at this time. I have been thinking a lot lately about being busy and "on the go" all the time. I never take time to stop and breath. My agenda always has something on it, without fail. Then i sit and wonder why i am so worn down. Its because i never stop and breathe.
If the secular city of Chicago understands the need for a sabbath, why don't i? Why don't i let my body rest and relax. It is constantly begging for time with its Creator but i don't listen and i continue to push myself until i am worthless to everyone around me.
Every night as i fall asleep, i hear the hustle and bustle of the city outside my window. But today it had a different sound. The sound of rest. I never knew the city could teach me so much about something that i should have been able to show the city. Sabbath.
Sunday, January 15, 2012
Friday, January 13, 2012
Glorified Through My Weakness
Lately, I have begun to realize the work God has done in my life. After being diagnosed with Autoimmune Hepatitis, I was talking with my sisters and my mom. They would say things like "she is our miracle sister" "God has brought you through many things before, He will do it again". As they said this stuff I started to look back at what God had done and what He had to say through that.
Back in the day- I was 18 months old.
After a small tumble in our house in Hungary, my skull was cracked. My mom says she can remember bathing me and feeling a squishy part on my head. They took me to the hospital and i got a cat scan.
Doctors came back with the pictures and what do you know, the part was all back in place and nothing needed to be done. Before hand they thought they would have to do some work on my head, or something.
March 2010
Driving to school one morning. There was a decent amount of ice on the road I was driving on. I had done this drive so many times. I hit a patch of ice on the road and my car sped off the road at 55mph. I went off the road and straight into a tree. The tree and car impacted right at the drivers side light. Both air bags deployed and the car hit the tree and then slid on the ice around to a stop.
I was completely conscious. I un-buckled, tried to find my phone and couldn't. I stepped out of the car and a woman had stopped on the street. I asked her to call the police and she replied that she didn't know how. Mind you, it is freezing out and I am standing in inches of snow with clogs on. I wander over to her car and call them for myself...after i call my mom :)
I sit in her car for a few minutes then i decided to go gather my stuff. As i finished, the police and ambulance show up. Along with the tow truck. My car was done. No way at all to be redeemed. The paramedic took one look at the car and told me should have broken my legs or something. I was sitting very close to the wheel and the impact pushed up the bottom and should have crushed my legs.
I walked out of the car with two burns from the air bag and that was all. I was able to walk fine and talk and everything just fine.
May 2011
My senior year of playing softball. The season is coming to a close and we just got back from spring break. Our first game back. We are warming up before the game, nothing special. We are in lines and i was turned talking to a teammate next to me. I turn back to look at my partner and i turn right into a softball that is flying at my face.
I drop all of my stuff, lean over and as tears stream from my face i continue to grab my nose to make sure no blood is coming. The first two times i checked, there was none. The third time, there was gushing blood from my nose. My coaches come running to me and I told them I was about to pass out.They sat me down and I let all the blood run out. My whole face was swollen and I was in so much pain.
Later I was talking to my teammate that threw the ball. She told me this, "my grandpa was teaching me and always told me to aim for the nose.." I guess she was pretty accurate then! :)
The next day i went to the doctor, he told me it was broken and the probability of me needing some surgery was high.
I was sent to the hospital the day after that to get a cat scan. When the test came back, they showed that there was nothing wrong with my nose and no surgery would be needed! But if you looked at it before you could easily tell it was crooked.
November 2011
If you read my last post you would know about the autoimmune hepatitis i was diagnosed with. Short version- I had the symptoms of rheumatoid arthritis and I could not move, my joints were swollen. There was a 50/50 chance that this would be a life long battle. As time has gone on we have figured out that it is NOT life long and it was only because of a medicine and i am slowly being healed day by day. At this point i should be off of my steroids next week.
Back in the day- I was 18 months old.
After a small tumble in our house in Hungary, my skull was cracked. My mom says she can remember bathing me and feeling a squishy part on my head. They took me to the hospital and i got a cat scan.
Doctors came back with the pictures and what do you know, the part was all back in place and nothing needed to be done. Before hand they thought they would have to do some work on my head, or something.
March 2010
Driving to school one morning. There was a decent amount of ice on the road I was driving on. I had done this drive so many times. I hit a patch of ice on the road and my car sped off the road at 55mph. I went off the road and straight into a tree. The tree and car impacted right at the drivers side light. Both air bags deployed and the car hit the tree and then slid on the ice around to a stop.
I was completely conscious. I un-buckled, tried to find my phone and couldn't. I stepped out of the car and a woman had stopped on the street. I asked her to call the police and she replied that she didn't know how. Mind you, it is freezing out and I am standing in inches of snow with clogs on. I wander over to her car and call them for myself...after i call my mom :)
I sit in her car for a few minutes then i decided to go gather my stuff. As i finished, the police and ambulance show up. Along with the tow truck. My car was done. No way at all to be redeemed. The paramedic took one look at the car and told me should have broken my legs or something. I was sitting very close to the wheel and the impact pushed up the bottom and should have crushed my legs.
I walked out of the car with two burns from the air bag and that was all. I was able to walk fine and talk and everything just fine.
May 2011
My senior year of playing softball. The season is coming to a close and we just got back from spring break. Our first game back. We are warming up before the game, nothing special. We are in lines and i was turned talking to a teammate next to me. I turn back to look at my partner and i turn right into a softball that is flying at my face.
I drop all of my stuff, lean over and as tears stream from my face i continue to grab my nose to make sure no blood is coming. The first two times i checked, there was none. The third time, there was gushing blood from my nose. My coaches come running to me and I told them I was about to pass out.They sat me down and I let all the blood run out. My whole face was swollen and I was in so much pain.
Later I was talking to my teammate that threw the ball. She told me this, "my grandpa was teaching me and always told me to aim for the nose.." I guess she was pretty accurate then! :)
The next day i went to the doctor, he told me it was broken and the probability of me needing some surgery was high.
I was sent to the hospital the day after that to get a cat scan. When the test came back, they showed that there was nothing wrong with my nose and no surgery would be needed! But if you looked at it before you could easily tell it was crooked.
November 2011
If you read my last post you would know about the autoimmune hepatitis i was diagnosed with. Short version- I had the symptoms of rheumatoid arthritis and I could not move, my joints were swollen. There was a 50/50 chance that this would be a life long battle. As time has gone on we have figured out that it is NOT life long and it was only because of a medicine and i am slowly being healed day by day. At this point i should be off of my steroids next week.
All of this to say that God has over and over again used my weakness, my body, to glorify Himself. As a girl, my self perspective view of myself is already not where it should be. It is one thing in my life that i have struggled with, my image, my body.
But that doesn't matter to God. He has shown his glory and His sovereignty through my body so many times. He continues to tell me "Don't worry about your body. I have it in my hands and it is valuable to ME and that is all that matters"
God has glorified Himself through my weakness all through out my life and this is something that I am learning just now.
He is the Author and Perfecter of my life and I have no reason to worry about things when I am His and He is in control.
Sunday, January 8, 2012
Autoimmune Hepatitis.
Thursday November 10, 2011.
I woke up in the early morning, before my alarm, to go to the bathroom. I stand up out of my bed and I am instantly frozen. My body hurts so badly that I cannot not move my legs enough to walk over to the dresser. I lean against my bed and just breath for a minute. I gain some amount of energy to walk to the bathroom. I am half bent over walking very slowly to the bathroom.
I get to the bathroom. Feel light-headed (I have a past of passing out when i am in pain, so i knew what to do when i felt it) so i grab the wall in the stall and slowly slide down to sit. I sat on the ground and verbally pray for God to heal me and take away this excruciating pain. I could not do anything. My hands were swollen and my legs were swollen and basically doing anything ended in severe pain. I lean my head against the wall and passed out. After who knows how long, i came out of it and began to pray again out loud because i could not move. As i began to gather myself and get up, someone walked into the bathroom. I got up and opened the door. I look and a girl from my floor Alissa is looking at me with wide eyes.
"Are you alright dear?"
"Uhm.. i don't think so.." and i began to tell her of everything that just happened. She took me back to my room slowly and helped me get back in my bed.
I sat in my bed for the next hour in so much pain that i could not move my feet in my sheets, i began to just lay there and cry to God for help. I had never felt anything like this.
-before this i had been having SOME pain in my joints and i thought that it was maybe because of exercising more or sleeping funny-
When my alarm went off, i told my roommate of all that had happened and then called my mom and told her. She found an immediate care for me to go to that morning. I got a friend of mine to take me. We got there and i almost passed out again. They put me in a room quickly to wait for the doctor. Mind you, this whole time i can barely walk. The doctor came in and i explained it all to him and everything that had been going on. He told me that they were going to take blood and then get some results. In the mean time, he gave me pain medication so i could function.
Tuesday November 15, 2011
I am walking to Old Testament class and i get a call from a Chicago number that i don't know, i assume it is the doctor. I answered and the women on the other line told me they had my results. I was preparing for her to just tell me and then tell me what to do about it. She then asks if i can come in to see the doctor that day before 12...instantly i knew that it wasn't something little. I called my mom and told her about it, she reminded me that my dad didn't have class that day, so he came with me for support.
I get to the office and walk back in the room. Over these few days the pain medicine has been doing wonders and i am feeling fine. I only am a little stiff after sitting for a while. The doctor sits down and tells me about the results. He shows me that everything is fine on the first sheet. Then he says "well everything seems normal except your liver count. is out of range. One of them is 800 and should be 20. The other one is 1255 when its supposed to be 40." I just looked at him and said "wow". He then began to tell me what that could possibly mean. He told me that the results showed up that i autoimmune was detected. Which meant it was either Lupus or something called Autoimmune Hepatitis. The doctor said that the lab was doing more work on my blood still and would have the results in a few minutes. The phlebotomist came in and took more blood. Little did i know that the five viles from the first day and the five viles from the second day would be nothing!
Doctor came back in and sat down. He told me that the autoimmune system was detected again in the results so it wasn't a false positive from the first test. Then he looked at me and told me that i had autoimmune hepatitis. Which means my antibodies were attacking my liver because they thought it was an intruder of my body...but it wasn't. Essentially leaking toxins throughout my body. Symptoms: rheumatoid arthritis. Which explains why i could not move and was in severe pain for the past days.
As he explained this i just listened and nodded and figured out what to do next. The doctor was surprised i wasn't freaking out a little more. I told him there was nothing i could do about it, so i just need to know what to do next. I don't think the thought of this being a disease had set in yet. The doctor left to go do something, i immediately texted my mom, dad and best friend to tell them. I left the doctor's office with an appointment with a liver specialist the next day at Northwestern Hospital.
Wednesday November 16 2011
I woke up the next morning planning on going to the hospital with my dad, then leaving to go home for thanksgiving break. Once again, woke up to take a shower and i could not move. I began to walk to the door and had to stop and my roommates bed and sit because i was about to pass out. I laid on her bed for a minute, then got up and went to the shower. I got in the bathroom, sat down on a bench, leaned my head against the wall and passed out again. I came out of it, and went into my room and just got ready to leave. I met my dad downstairs and i slowly but surely made my aching push to the car. I had not taken pain medicine this day because i didn't have breakfast yet.
Got to the hospital and made it to the liver specialist in a slow manner. The doctor and her med student assistant checked me out and asked questions and asked medications i had been on and so on, the normal things. They told me that it was most likely cause by a medicine i had been taking for my skin since i was 14. They told me to completely stop taking that. They wanted to do more tests to make sure it was the medicine and not just my body doing it to itself. I was told to stop taking pain medication too. I was so shocked i thought i was going to be in pain forever now. They then told me that i would get some steroids to take in the mean time to help with that. The nurse said that the steroids would make me hyper and i would not feel a thing. I was praying she was right....and she was! After we met the doctor, she sent me to get more blood drawn and then to get an ultrasound. My dad had to wheel me around the hospital because i couldn't move at all. It was excruciating.
We left the hospital after multiple hours of being there with a prescription for steroids and a note to get my blood drawn in a week again. We headed home and as we got there, i told me dad i was scared to get out of the car because it hurt so bad. I made my way inside, hugged my mom and began to bawl in her arms. I was finally in a safe place where i could cry and feel scared and sad and worried. I began to take the steroids that day.
Thursday November 17 2011
THANKSGIVING DAY!
i woke up a little sore, but not nearly as bad as before. By the time thanksgiving meal was over and i had my seconds steroid in my body, i could run. After the meal, i hopped on the treadmill and ran a mile, no problem.... WHAT?! Not 24 hours before that, i could not even walk to the door from the car.
-From that week on, I have had blood drawn every week or every two weeks to check my liver count. Praise God, every week they have been coming down in dramatic ways. I started off taking 2 steroids a day and then 1 and a half and now i am down to just 1. I am hoping that soon it will be just a half!-
- Up to this point i have had 25 viles of blood taken, in just under 2 months
I am getting better, i don't feel any pain and nothing is swollen anymore. Though, i don't like the side effects of the steroids..in the long run, it is so much better than dealing with that pain ever again.
So, the problem was the medicine i had been taking for a long time, so now that i have stopped that, i am seeing results in my liver which means it wasn't my body attacking itself out of no where.
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